Is it me or is going on holiday with MS exhausting and traumatic?
All the advice on websites and social media states that planning is the key and we can all have an enjoyable, stress free holiday as long as we spend months thinking through every detail. I always plan my trips within an inch of their lives but this year I’ve still been caught out and feel I need a week alone in a dark room to recover!
Why do holiday companies advertise their accommodation as “fully accessible” when what they really mean is, “we’ve ticked a few boxes so hopefully you can manage”
I wasn’t even able to get in to my accommodation last week as there was a step and the door to the bathroom was too narrow to get my scooter in. I then had to spend days trying to get it sorted out and relying on my husband to heave me in and out of the loo! I’d spoken to people on the phone before I booked and trusted the glossy pictures on the website so how much more planning can I do?
Sometimes things are completely out of our control though and no amount of planning and imagining worse case scenarios can prepare us for what goes wrong. I learned this the hard way this year when a badly fitted shower seat came away from the wall while I was on it, depositing me on the floor with no way to get up! Luckily, I plan for “miscellaneous occurrences” and my sister was there and marched down to reception in her pyjamas for help, otherwise I might still be there! It would be nice to be able to trust the accessibility of places though and be able to be independent!
As a result, I’ve spent much of this year writing strongly worded complaint emails and am still waiting for the outcomes but why does it have to be like this? Why can’t things just work out? I do my bit; planning, so why can’t holiday companies and hotels do their bit and have adequate facilities for disabled people? I wouldn’t book accommodation with a flight of stairs or insufficient equipment as I’d have a stressful time and would have to rely on those around me for help so I need to be able to trust that when it says “accessible” it means it!
I have had good experiences too though, there’s a lovely hotel in Sussex my husband and I stay in that has a wonderful accessible room so it can be done!
I’d love to hear recommendations from people too; where are all the good places?