Is it me or is living with MS really hard?
Usually I shrug off negativity as it’s not helpful and I’m naturally a positive person, but just lately I’m struggling to cope.
It feels as if all my reserves of energy and resilience have depleted and I don’t have the emotional strength to fight on anymore. It feels like I’m on the edge of an emotional tightrope, with one side being strength and courage and the other side despair!
It doesn’t take much to nudge me over the edge at the moment and being unable to get involved with my son’s rugby club like all the other mums is the latest straw that’s threatening to break the camel’s back!
The sense of isolation doesn’t help. I’m physically isolated due to being unable to easily pop in and see people, and meeting friends in bars and restaurants is exhausting due to general inaccessibility. I’m dependant on people all the time and can’t do anything spontaneously. People have stopped inviting me to things and only my dear friends keep in touch and make the effort to see me.
I’m also emotionally isolated as people don’t understand and sometimes react with irritation and annoyance when I try to express how I feel.
I’m so grateful, therefore, to the online MS community who get it immediately. What did MSers do before they could rant on twitter?
What can I do to get my mojo back?
I’m sure I’ll bounce back and feel positive again as the alternative terrifies me. I have to remain strong for my children who can do without a mum on the edge of misery all the time with her bottom lip quivering! They’re used to me smiling despite everything being so hard and I’m proud that I usually demonstrate resilience and strength.
My son took it all in his stride when I couldn’t watch him play at the weekend and pointed out all the ways I support him. This only goes a small way to making me feel like a “good enough” mother though and the guilt is omnipresent!
I’ve been strong and resilient for 12 years since my diagnosis but sometimes MS is overwhelming, and I feel like wallowing in self-pity. Is this ok or should we all put on a brave face for the sake of those around us? I’d love to hear your views ……………