This week I renewed the domain name for my website. I can’t believe it’s been a whole year since I started blogging about my experiences living with MS. It all happened by accident as I’d been made redundant from my job in the Criminal Justice System. My confidence was at an all time low and I felt unable to apply for jobs and go for interviews due to my obvious disability. I decided “if you can’t beat them, join them” so set up as a freelance writer and trainer. A year later and I’m working with some inspirational charities and have met some amazing people. What have I learned then about blogging and MS?
Writing is great therapy and it’s helped me accept so much about myself. I’m in a much better place emotionally than I was last year and my confidence is stronger than ever.
Be honest and open, people will identify with honesty and your posts will resonate more.
Write about what you know.
Write about what annoys, upsets and inspires you.
Don’t plan posts too much as it will all spill out once you start writing.
Never write with readers in mind. Write for yourself.
Bloggers and people on social media often talk about their “MS journey” and I don’t like this phrase. A journey implies a trip with purpose where you know where you’re going, my experience is more of a blind stagger into the unknown! The more I accept that blind staggering is inevitable with chronic illness the more open I’ve felt to learning as I go and sharing what I’ve found out.
Acceptance is important and doesn’t mean giving up and resigning yourself to disability. I need wheels to get about easily so I use a scooter! Simple, but it’s taken me 2 years to accept this. Able bodied people often use the phrase, “confined to a wheelchair” but to me my scooter represents freedom! I was confined by my lack of mobility and the scooter’s set me free.
Acceptance has made me more of a fighter too. I’ve massively improved what I eat, for example, as this can have an impact on health. Michael J Fox summed it up recently when talking about living with Parkinsons Disease, “Acceptance doesn’t mean resignation; it means understanding something is what it is and there’s got to be a way through it”
My symptoms haven’t got any worse over the last year but my attitude to them has improved dramatically. Thanks to writing my blog, engaging with the muMS facebook page and all my #MSPals on twitter I’ve learned loads and have met some great people.
I read lots of MS blogs to learn more about MS and steal good ideas! I’d love to know what other people think about blogging. Why do you write? Who do you read? Why do you read MS blogs?