Wish me luck ……

wish me luck

I’ve been preparing a presentation for a job interview this week. This is a promotion at work with much more money and responsibility. I think I’m qualified and have all the relevant experience, having done similar roles twice, so I think I’ve got as much chance as the other candidates.

I can’t help wondering if I’m kidding myself due to my disability though. Am I still employable now I can’t walk? Am I what the organisation wants to represent them?

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It could be worse ……

MND

I’ve just finished reading “Every Note played” by Lisa Genova and am writing this through tears at the beautiful, insightful and moving portrayal of someone living with ALS.

ALS is another name for Motor Neuron Disease (MND) and I could see many parallels with MS. I have a fascination with reading about a life changing diagnosis as I can obviously relate to the characters and empathise.

I can relate to how the protagonists body began to let him down and how his initial denial led to fear and isolation. I can also empathise with how he didn’t want to confront his situation and let other people in to help him.

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On flouncing out with Multiple Sclerosis …

exit

I’m not one to shy away from confrontation, especially when I’m in the right. There’s nothing more satisfying than coming up with the perfect, witty parting shot before flouncing or storming off!

I remember years ago when someone challenged me in a supermarket car park for daring to park in a parent and child space. I thought it strange that she was jumping up and down and pointing out the £60 fine for flouting the rules before making absolutely sure I was guilty. I calmly retrieved my infant son from the back seat before smugly stating, “get your facts straight before you speak to me” and flouncing off.

It’s much harder to achieve when you’re disabled though and rely on other people to help you!

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New life outlook …

NLO

I write monthly articles for the wonderful, online community, New Life Outlook.  https://ms.newlifeoutlook.com/

It occurred to me that readers of this blog might not have read these articles so I’m going to share them here once they’re published.

My latest article is on the dreaded self-catheterisation! Click on the link below to read part 1 and browse other MS articles on the site.

Let me know what you think.

https://ms.newlifeoutlook.com/ms-and-self-catheterization/

ISC

Cog Fog Slog ……

cog fog

I’ve been on leave from work this week and what I notice most is the impact on my “cog fog”. Cognitive fatigue is an invisible symptom of MS but can be as disabling as the obvious physical disabilities I have. It often leaves me unable to hold a thought in my head or string a sentence together, making conversation an uphill slog.

I work part time in a demanding role that sometimes leaves my brain in tatters! I have a caseload of chaotic people, many of whom have issues with substance misuse and mental health so whilst I find it challenging and rewarding I also find supporting them zaps my cognitive abilities.

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MS holiday blues ……

hols

Is it me or is going on holiday with MS exhausting and traumatic?

All the advice on websites and social media states that planning is the key and we can all have an enjoyable, stress free holiday as long as we spend months thinking through every detail. I always plan my trips within an inch of their lives but this year I’ve still been caught out and feel I need a week alone in a dark room to recover!

Why do holiday companies advertise their accommodation as “fully accessible” when what they really mean is, “we’ve ticked a few boxes so hopefully you can manage”

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